TSCTalk was created in 1995 as a family support mailing list for those affected by Tuberous Sclerosis (also known as TSC or TS). The old mailing list was a family of approximately 200 people, all who shared their trials and tribulations while dealing with this disease. I hope this new TSCTalk Group will have the same family feel as the old.
What is Tuberous Sclerosis?
Tuberous Sclerosis (TSC) is a genetic disorder that causes benign tumors to form on various organs in the body. Many people with tubeorus sclerosis have seizures, autism and mental retardation. At the same timel, some people do not have any outward signs of the disease and are so mildly affected they may not even know they have TSC. It is hard to say exactly how a person will be affected and what symptoms they will have, so knowledge is key.
I have been personally touched by this disease. Many members of my family have tuberous sclerosis, including myself and my daughter (pictured at right). There have been many ups and downs through our lives, and through the worst times, the TSCTalkers were there to say "it's okay" or "things will get better". After an absense of approximately 4 years, I have decided to start over and put the list back up. I hope we get many more subscribers, and that we can support those who need it.
How Do I Subscribe to TSCTalk?
To Subscribe to the Google Groop TSCTalk, simply put your email address in the box to the right and click subscribe. If you'd like to first visit the group at Google, click on the Visit this Group link under the box on the menu.
What do you want to see here?
I would like to change the photos on this site periodically, so if you would like to take part in the renewal of TSCTalk, send me your picture and you just might find it posted here when you stop by to visit!